Welcome
Hello,
Welcome to my Blog. I am hoping to reach a lot people this way. So feel free to write down any thoughts you may have. They don't all have to be gloom and doom. I'd love to hear from anyone who has some humorous stories to tell as well.
Thanks for checking out my website. Please feel free to write any responses you may have down. I really hope it was helpful and that it will reach people all over the world who have auto immune diseases or who are in the supportive role.
Cheers
Karen
Welcome to my Blog. I am hoping to reach a lot people this way. So feel free to write down any thoughts you may have. They don't all have to be gloom and doom. I'd love to hear from anyone who has some humorous stories to tell as well.
Thanks for checking out my website. Please feel free to write any responses you may have down. I really hope it was helpful and that it will reach people all over the world who have auto immune diseases or who are in the supportive role.
Cheers
Karen
posted by Karen at 8:39 AM
6 Comments:
Hello,
Welcome to my Arthritis Blog page. This can be used to share your arthritis story and to get to know others with the disease. We can support each other. Don't be shy. We're here to laugh and cry with you.
Karen
Love the site!
I have a son who's had RA since he was 6yrs old..he's now 26yrs old & things never got better(like his 1st rheumatologist told him). I just don't know how to deal with him. I get knots in my stomach every time I think of him because I feel so helpless. He would think I was nuts if he knew how many times I cried for him. Any suggestions on how a mother is to cope better???
Hi Mindy,
Thank you for your comment. I am sorry to hear about your son's suffering and also the pain it has caused you. My mom went through exactly the same thing with me and I realized in many ways the disease was harder for her to deal with than for me. She's always said there's nothing like the love a mother has for her child. The first thing you must do is to try not to blame yourself for his disease. It is nobody's fault; it is just life. Try to accept his disease for what it is knowing that it can be managed and controlled well these days. Encourage and help your son to realize his full potential. When you see him happy you will be happy too. Acceptance of his RA is the most important thing here for both of you. Try to shift your focus (when you are thinking about your son) from concentrating on his illness to all his wonderful qualities and to thoughts about what you love and appreciate about him. Every time you feel sad try to block that thought with a positive emotion about him. This will help you to move forward towards a happier future. I will also ask my mom to post a blog in the next few days so she can give you her advice from a mother's point of view. I hope this helps you. Is there any one thing that triggers your tears?
Karen
I don't know what upsets me so much -I can't put my finger on it. I just try to think of the other parents with children with life threatening diseases & it makes me feel a little better about my own situation. I really appreciate your response so fast. I look forward to reading your blog everyday for more insight. Thanks alot!
Mindy, A very big "Hello" to you. I am Karen's mother and when I read your story tears just would not stop. Oh, I do know how you feel and I wish I could just hug you for a moment to share the desperate feeling that just overwhelms us sometimes.
I noted that your son has been suffering since he was 6 years old . How sad that he did not even enjoy his early years without the pain of this hideous disease. At least Karen and I shared those early years without that worry!
Early in her diagnosis it was not immediately clear to me how bad this disease can be. In time I realised with "shock horror"
what it does or can do to a person.
I have no "words of wisdom" for you. I don't even know if any exist for people who must endure this pain day in day out, but what I am sure of is that we must always keep a clear head, remain positive about the future and understand that "worry" is future-based and often revolves around things that never happen. I firmly believe that when Karen was finally able to accept her chronic disability, life changed for both of us.
I don't know where your son is at at this point in time but hopefully he is moving forward and making the most of all the positive help that is out there for sufferers.
There is much to read on this subject and other seemingly hopeless cases which people have had to face.
I think that our children are much stronger then the credit we give them sometimes. Cry Mindy, if it makes you feel better, heavens knows that I have had inconsolable days and if you believe in prayer, do that too.
Please feel free to write anytime. If I can help in any way, please let me know. Johanna
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